I really should have said something earlier this week but I suppose I got wrapped up in life at school and home.
Aiden made it through last weekend pretty well. My sis and bro-in-law saw a local Peditrician on Monday who went over the EEG with them. There was nothing to be found, so he said that they needed to make an appointment with a Pediatric Neurologist.
Echo went throuh a time of phone calls not being returned and finding out that there isn't a neurologist in Billings; Denver does have one though. And Aiden, who was put on anti-seisure medicine, seemed a shell of himself but at least wasn't having the seizures.
That all changed Wednesday afternoon, when he had two seizures in a row. The ER increased his dose of Keppra and told Echo and Paul that they shouldn't bring Aiden back unless he had two more in a row. He had one that evening and another one early yesterday morning. Echo finally got a referral from the doctor to get Aiden to the Pediatric Neuraologist in Denver. The appointment is for 2 p.m. today. He had more seizures yesterday and they talked about increasing his medicine again and decided the best thing was to get him to Denver.
Echo and Paul left yesterday afternoon to drive to Fort Collins and stay with Paul's Uncle for the night. About fifteen minutes after arriving, Aiden had a fifteen-minute seizure and they took him by ambulance to the hospital where he was admitted for observation. I woke to text messages from Echo and Mom that he had another small one this morning. They are thinking about giving him valium to stop them until they can get to the appointment this afternoon. Mom said that Aiden didn't want to go to sleep at the hospital. He wanted them to fix him so he could go to Mema's house. He told her yesterday that he is freaking out.
Anyway, this is all really a plea that you keep that little boy, his parents, his extended family and the doctors in your prayers. Mom said something about thinking earlier this week that maybe our family is overreacting and making a big deal about something other people deal with daily. But the fact of the matter is that we don't know why Aiden is having the seizures. I've tried to stay strong this week and shut myself off to tears and been very peaceful that God is in control. I did break down last night, however, after coming home from Mom and Dad's. Shaun had sent me a text that said I needed to get sleep and leave Aiden in the doctor's and God's hands. He meant no harm, but it started me on a rant of what I "need." Why should I get sleep when Aiden can't get rest without his body "freaking out?" That only led to more why, how and what questions. After getting a few hours sleep the peace is back, but the questions remain in the back of my head. Please pray. I will try to update more this weekend when we know seomthing.
UPDATE: As of 9:30 this morning he is getting ready to be transported by chopper to Presbyterian/St. Luke's in Denver and they'll be putting him in the Pediatric ICU. He's getting Dilantin by iv right now. Echo and Paul have to drive to meet him at the hospital. He has had four seizures since 4:30 this morning.
love me like my demons do
3 years ago
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